Kari Luther Rosbeck

Kari has been involved in nonprofit fundraising and volunteer management for more than 30 years. During Kari’s tenure as President and CEO since 2007, the TSC Alliance established a comprehensive research program fostering collaboration with industry and academia to move treatments for TSC forward in a more expedited way. The “Unlock the Cure” research strategy focuses on key points along the drug discovery path and has also served as a capital fundraising campaign with more than $24 million raised for TSC research since August 2011. Because of her leadership, the organization has taken an active role in educating the TSC community about clinical trials to diminish the time for recruitment, including pivotal trials that have led to three FDA-approved drugs specifically for TSC.