The Epilepsies

Taking Action Together: What You Can Do! Summer 2024 enewsletter

Jack Copeland

Aug 161 min read

Taking Action Together: What You Can Do! Summer 2024 enewsletter

Be in the know now - Authorization language in planning!

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"Dear Colleague" Letters from Epilepsy Caucus Chairs to their Peers

Jack Copeland

May 232 min read

"Dear Colleague" Letters from Epilepsy Caucus Chairs to their Peers

EAN worked with our partner the Epilepsy Foundation (EF) to draft and circulate two member-led "Dear Colleague" letters (in House and...

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Pediatric Epilepsy Research Consortium (PERC) & EAN Go to Capitol Hill

Jack Copeland

May 95 min read

Pediatric Epilepsy Research Consortium (PERC) & EAN Go to Capitol Hill

Pediatric Epilepsy Research Consortium (PERC) joined Epilepsies Action Network (EAN) for an extraordinary day of advocacy on Capitol Hill...

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Celebrating FY24 Successes for The Epilepsies

Jack Copeland

Mar 294 min read

Celebrating FY24 Successes for The Epilepsies

Epilepsies Action Network and our many Partners are pleased to share that the needle was MOVED for the epilepsies thanks to your efforts...

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Early FY25 Calls to Action for ALL Epilepsies Stakeholders

Jack Copeland

Mar 112 min read

Early FY25 Calls to Action for ALL Epilepsies Stakeholders

Epilepsies Action Network and partners organized our first webinar of the new year. It was an informative and engaged discussion across...

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Epilepsies Stakeholders Across the Nation Urge President Biden to Increase Epilepsies Research Funding on International Epilepsy Day

Jack Copeland

Feb 126 min read

Epilepsies Stakeholders Across the Nation Urge President Biden to Increase Epilepsies Research Funding on International Epilepsy Day

Today as we celebrate International Epilepsy Day (#EpilepsyDay), epilepsies stakeholders from across the Unites States joined forces...

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Outlook 2024: Shifting Government Landscape

Jack Copeland

Jan 191 min read

Outlook 2024: Shifting Government Landscape

G2G Consulting shares its outlook for 2024 with Epilepsies Action Network and the epilepsies stakeholders. Note this is current as of...

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2023 was a Pivotal Year for Epilepsies Advocacy!

Jack Copeland

Jan 22 min read

2023 was a Pivotal Year for Epilepsies Advocacy!

2023 proved to be a pivotal year for epilepsies advocacy and policy. What started as a pilot project has demonstrated that these efforts...

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Call to Increase Epilepsies Awareness & Resources NOW - NEAM2023 Congressional Briefing

Jack Copeland

Nov 21, 20236 min read

Call to Increase Epilepsies Awareness & Resources NOW - NEAM2023 Congressional Briefing

On Nov 14, the bipartisan Epilepsy Congressional Caucus organized a briefing in cooperation with Epilepsies Action Network (EAN) and our...

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Senate LHHS Report Includes The Epilepsies

Jack Copeland

Aug 30, 20232 min read

Senate LHHS Report Includes The Epilepsies

Following the release of the FY24 Senate LHHS Appropriations bill at the end of July, the Epilepsies Action Network is pleased to share...

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Share YOUR Inputs for Federal Funding for the Epilepsies

Jack Copeland

Jul 12, 20239 min read

Share YOUR Inputs for Federal Funding for the Epilepsies

The Epilepsies Action Network (EAN) would like your input as we plan legislative action for 2024. Please share your top three policy...

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Is YOUR Members of Congress on the Epilepsy Caucus?

Jack Copeland

Jul 6, 20232 min read

Is YOUR Members of Congress on the Epilepsy Caucus?

Visit the bipartisan Epilepsy Caucus to see if your US House of Representatives have joined. And if not, you can encourage your U.S....

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36 Organizations Urge Increased Federal Funding for the Epilepsies

Jack Copeland

May 17, 20232 min read

36 Organizations Urge Increased Federal Funding for the Epilepsies

Over 36 epilepsy organizations joined forces signing a letter to the House and Senate Appropriations Committees urging them to provide...

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Congressional Briefing on the Epilepsies - A Huge Success!

Jack Copeland

May 16, 20232 min read

Congressional Briefing on the Epilepsies - A Huge Success!

On May 17, Epilepsies Action Network (EAN) was pleased to participate in a Congressional Briefing on the Epilepsies in cooperation with...

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Jack Copeland

Mar 28, 20231 min read

Spring Into Action

Epilepsies Action Network (EAN) has sprung into action! You are receiving this enewsletter update because you have joined past EAN...

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What Does the Omnibus Mean for The Epilepsies?

Jack Copeland

Dec 21, 20222 min read

What Does the Omnibus Mean for The Epilepsies?

Epilepsies Action Network advisors are still reading their way through this 4,000 page document. But a few key highlights follow: HHS...

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Epilepsies Action Network | Thank You & Year End Update

Jack Copeland

Dec 21, 20222 min read

Epilepsies Action Network | Thank You & Year End Update

As 2022 draws to a close, we want to thank you for your partnership and collaboration. As you know, the goal of the Epilepsies Action...

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Undiagnosed Disease Network Funded at $18M for FY23

Jack Copeland

Dec 20, 20221 min read

Undiagnosed Disease Network Funded at $18M for FY23

Epilepsies Action Network alongside other thought leaders for The Epilepsies advocated to the Senate and House Appropriations Committees...

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Advocating ARPA-H Prioritize The Epilepsies

Jack Copeland

Dec 15, 20221 min read

Advocating ARPA-H Prioritize The Epilepsies

Epilepsies Action Network wrote to Dr. Renee Wegrzyn, new Director of Advanced Research Projects Agency for Health (ARPA-H) to request...

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