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Ilene Miller
Nov 21, 20241 min read
It Just Happened
A bill to establish a national plan to coordinate research on epilepsy, and for other purposes, was introduced in the Senate & House.
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May 23, 20242 min read
"Dear Colleague" Letters from Epilepsy Caucus Chairs to their Peers
EAN worked with our partner the Epilepsy Foundation (EF) to draft and circulate two member-led "Dear Colleague" letters (in House and...
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Mar 29, 20244 min read
Celebrating FY24 Successes for The Epilepsies
Epilepsies Action Network and our many Partners are pleased to share that the needle was MOVED for the epilepsies thanks to your efforts...
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Mar 11, 20242 min read
Early FY25 Calls to Action for ALL Epilepsies Stakeholders
Epilepsies Action Network and partners organized our first webinar of the new year. It was an informative and engaged discussion across...
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Feb 12, 20246 min read
Epilepsies Stakeholders Across the Nation Urge President Biden to Increase Epilepsies Research Funding on International Epilepsy Day
Today as we celebrate International Epilepsy Day (#EpilepsyDay), epilepsies stakeholders from across the Unites States joined forces...
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Jan 19, 20241 min read
Outlook 2024: Shifting Government Landscape
G2G Consulting shares its outlook for 2024 with Epilepsies Action Network and the epilepsies stakeholders. Note this is current as of...
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Jan 2, 20242 min read
2023 was a Pivotal Year for Epilepsies Advocacy!
2023 proved to be a pivotal year for epilepsies advocacy and policy. What started as a pilot project has demonstrated that these efforts...
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Nov 21, 20236 min read
Call to Increase Epilepsies Awareness & Resources NOW - NEAM2023 Congressional Briefing
On Nov 14, the bipartisan Epilepsy Congressional Caucus organized a briefing in cooperation with Epilepsies Action Network (EAN) and our...
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Sep 7, 20232 min read
A Summer Spent Listening
We are excited to report on some summer successes! We appreciate legislative advocacy can be confusing with many moving parts. We will do...
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Jul 12, 20239 min read
Share YOUR Inputs for Federal Funding for the Epilepsies
The Epilepsies Action Network (EAN) would like your input as we plan legislative action for 2024. Please share your top three policy...
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May 17, 20232 min read
36 Organizations Urge Increased Federal Funding for the Epilepsies
Over 36 epilepsy organizations joined forces signing a letter to the House and Senate Appropriations Committees urging them to provide...
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May 16, 20232 min read
Congressional Briefing on the Epilepsies - A Huge Success!
On May 17, Epilepsies Action Network (EAN) was pleased to participate in a Congressional Briefing on the Epilepsies in cooperation with...
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Mar 28, 20231 min read
Spring Into Action
Epilepsies Action Network (EAN) has sprung into action! You are receiving this enewsletter update because you have joined past EAN...
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Dec 21, 20222 min read
What Does the Omnibus Mean for The Epilepsies?
Epilepsies Action Network advisors are still reading their way through this 4,000 page document. But a few key highlights follow: HHS...
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Dec 21, 20222 min read
Epilepsies Action Network | Thank You & Year End Update
As 2022 draws to a close, we want to thank you for your partnership and collaboration. As you know, the goal of the Epilepsies Action...
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Dec 20, 20221 min read
Undiagnosed Disease Network Funded at $18M for FY23
Epilepsies Action Network alongside other thought leaders for The Epilepsies advocated to the Senate and House Appropriations Committees...
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Dec 15, 20221 min read
Advocating ARPA-H Prioritize The Epilepsies
Epilepsies Action Network wrote to Dr. Renee Wegrzyn, new Director of Advanced Research Projects Agency for Health (ARPA-H) to request...
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